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His Plan is to Die Soon

Our parenting columnist shares her struggle trying to help her aging parents as they make increasingly childlike decisions.

Both my mom, 80, and my dad, 85, decided this would be a good year to stop seeing their doctors and stop taking their blood pressure medicines.

My dad, who had a pacemaker implanted in his chest six months ago, says he gives up on doctors.

His plan is to die soon. He seems to look forward to it like a child anticipating Christmas.

He’s in almost constant pain these days but lost all faith in doctors long ago.

Mom doesn’t want to go to the doctor because she doesn’t want to be found out.

She’s worried her escalating dementia, or whatever it is that is causing her to become increasingly forgetful and confused, will be diagnosed, and she’ll be sent to the loony bin.

I gave up months ago trying to talk to them directly, adult to adult, about the health and safety concerns I have for them. Each attempt was met with growling and “mind your own business” and other unpleasantness.

For whatever reasons, they are more comfortable taking directions from my brother, so I’ve let him handle mediations with them. Only now they aren’t listening even to him.

My brother and I have finally come to a crossroads, officially giving up hope they will ever pick up a phone and make the doctor appointments themselves.

We've come to realize, if we don't make the appointments for them, they will never go.

My brother called their doctor and will be taking them next week.

What’s helped us most recently is a third-party elder care assessment service, provided by United Healthcare Services, called  EverCare. I’m very lucky and grateful that this service is paid for through my work, but anyone can hire an elder care service like this, and I believe it’s a valuable investment.

They came to my parents’ house a few weeks ago, asked lots of questions about their health, aches, pains, concerns, mobility issues, what meds they were and weren’t taking and so on.

From that came a report: recommendations on improvements that would need to be made to the house if they want to continue living there; suggestions for safety (“don’t walk around the house in socks” was one); they also researched and recommended assisted living facilities for us.

It’s sad to see your aging parents start acting like children, making dangerous and irresponsible decisions. But equally challenging  is how to intervene in a way that respects their dignity.

If they truly do prefer to stay in the home they love until they die, who are we to say they can’t?

To me, the line is drawn when they start putting themselves and others at risk.

My mom is still driving. She’s never had an accident and her dementia is not yet so fully progressed that it’s impacted her ability to drive. Yet that could change in a week, a month, a year, who knows? When is the right time to tell her she can’t drive anymore?

And that’s just one of the tricky questions my brother and I will have to grapple with in coming months.

I visited my parents last weekend.

As we said our goodbyes, my dad turned into Walter Matthau in Grumpy Old Men. “Why’d ya waste all that gas coming all the way up here for? What are you? Rich or something?”

My parents live in Arnold, about three hours from San Ramon, in the mountains, where snow is still falling in June, as if to underscore the upside down-ness I’ve been feeling lately.

I held dad’s hand;  felt his fingers, big like sausages, wrap around mine and squeeze me tight.

I looked straight into his watery, grey-blue eyes. “I don’t know. Maybe because I love you, Dad?” I told him.

“I love you, too,” he said, his voice breaking. “I love you to pieces.”

isabel Lau June 4, 2011 at 01:53 pm
Thank you for sharing your experience with us. There are so many of us dealing with this and based on statistics the number will only increase.
I attended Gray Matters: Challenges of an Aging Society Thursday night at the Walnut Creek Library. Three panelists discussed elder care mediation services, elder abuse, and transportation services. They had helpful hints about approaching subject matters with our parents and had wonderful resource material available. Education, sharing, and supporting each other will help us navigate this stage of our lives.
Sherry Rosso June 5, 2011 at 04:15 pm
My father also made self-directed decisions at the end of his life, after decades of illness, and I made sure that all five of us concerned with making decisions about his care discussed the balance of his quality of life and his wishes. Thankfully, when we faced decisions about others' safety (such as his driving), the DMV took care of that issue for us - they required him to re-take his driver's test and submit doctor's notice that he was ok to drive. No one likes to give up their independence - their dignity and pride go right on along beside it.
Julie Knight June 6, 2011 at 02:22 am
Hi Isabel,
Sounds like you found a great workshop. Is there a URL you can share...or do you know if the workshop will repeat? Thanks for writing! I agree -- sharing info and supporting each other is so valuable. It can be overwhelming trying to deal with these issues on your own. I'm lucky my brother and I tend to agree on most things; otherwise, dealing with sibling conflicts on top of these issues would be awful. Julie
Julie Knight June 6, 2011 at 02:28 am
Hi Sherry,
Sounds like you took on a lot of responsibility. My hat is off to you for managing both your father's issues and coordinating with so many siblings...that had to be tough. You're right - it all comes down to pride in the end...it's really sad and takes a special child to be able to preserve a parent's dignity while also looking out for his or her safety. Sounds like you were able to find that balance. Thanks for taking the time to share your experience. Julie
anonymous June 12, 2011 at 01:49 am
Pride is a tricky subject, but ultimately, the child at some point needs to become the parent. My inlaws blew their life savings and got heavily in debt because my wife could not take away her dad's checkbook, nor would allow me to do it, even though she knew it was for his own good. Unfortunately their legacy will be the pain and extra work the family had to endure even after 4 years after their passing and the breakup of my marriage as a result of the above.
Julie Knight June 21, 2011 at 02:20 am
How devastating. I'm so sorry to hear about your tragic story - but thank you so much for posting this message. It's such a good reminder to all of us in this position - how important it is for us to make the hard choices we so don't want to make but have to. We need to step up and take on the parenting role when our parents become unable to care for themselves...and often, we need to do it against their will, which is heartbreaking.
My dad seems to be eating nothing but sweets all day now...oy. So sorry your situation led to the breakup of your marriage - it's so sad. My heart goes out to you.
David A. September 21, 2012 at 04:16 pm
Wow! Really great substantial content powerfully delivered. Many thanks from all of us who are going through similar circumstances.
David A.
Natalie Cohan September 21, 2012 at 04:29 pm
Long Term Care Insurance is one way to help protect assets that one accrues during their lifetime. I had the talk with my parents and mentioned keeping their dignity. They understood the importance of having LTC in place and how it is beneficial to all parties involved. I painted the picture of my mom or myself having to lift my dad from the bed to the bathroom, it is pretty vivid. Did you know that LTC will give care in your home or at a facility (varying degrees of help needed).
If you would like to learn more, feel free to email me: natalie.cohan.u7w9@statefarm.com

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KayLynn Neal June 6, 2013 at 03:52 pm
I too just noticed the sign. I'm wondering if they just recently changed the picture which is whyRead More we are all just noticing it if indeed it truly has been there since the 80s.......I certainly hope that it is an old sign and that this is not the beginning of other billboard signs lining our 680 corridor.
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There has been a sign there for years, this just a new image at same old location.
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Get rid of it, nobody wants to see trash like this ! Been here 35 years and its the only one I'veRead More seen, hopefully its the last !!!! I'm sure most people here don't want it around, we need to find a way to get it taken down !