I remember, when I was a kid, I would get red bumps or bruises or tummy aches or a stuffy nose, and my parents would take me to the doctor’s office (or the doctor would come to the house), and all would be right in the world. He knew what was wrong, gave it a name, and, as though he had waved a wand and said a magic spell, he fixed it. Remedies could be St. Joseph’s aspirin for children (now banned because it can cause Rye syndrome), a rubdown with alcohol to bring down the fever (now banned because it can cause brain damage), or even the dreaded shot of penicillin. What happened?
I developed a “sinus condition” over three years ago. I am calling it that because I don’t know what is really wrong – and neither does anyone else, it seems. I say that because I have seen 16 doctors and am about to see my 17th. This is not an exaggeration. I have seen about 10 ENTs, an allergist, an acupuncturist/holistic doctor, an environmental specialist, a rheumatologist, a pulmonologist – and the list goes on. These were the best and brightest at Yale, New York’s Beth Israel, Stanford, and UCSF Medical Center. Most of the time, they just ran out of ideas and passed me on to someone else. And no one no knows why I have symptoms.
There have been theories: deviated septum, partially blocked sinuses, severe acid reflux, neuropathy. There have been medications: 4 kinds of antibiotics, saline rinses, reflux medications, steroids, nasal sprays. There have been treatments: sinus surgery, acupuncture. What there hasn’t been is a cure or even a treatment that worked.
This all started in November, 2008. At first, it was constant throat-clearing and sniffling. Some days, I was exhausted from breathing and couldn’t even go to the gym after work. I would drug myself and go to bed because being awake was so uncomfortable. I had to cancel some social functions, and for others, I was too congested to even talk.
I had one doctor who told me “he was the guy.” He suggested a treatment that didn’t work, and when I came back to see him, he hadn’t even made the time to reread his notes and had no idea why I was there.
I finally found a very knowledgeable doctor in New York who spoke clearly and explained what the problem was with my sinuses. He’s the one I allowed to operate when I ran out of options. Although I don’t feel as bad as I did before the surgery, I am nowhere near where I used to be. For example, throughout my life, I was a first soprano, studied voice, and performed in many community theater and school musicals. I can no longer sustain a note. No one has an explanation for this. I am still congested and nasal-sounding, and I have burning pain in my nose frequently.
So, I will see doctor number 17 next week, another ENT. He will probably put a scope up my nose and charge my insurance company anywhere from $600 to $1000 and call it “surgery.” This time I am not excited to see someone new. I am going through the motions because that’s what I have learned to do. I don’t expect him to have any new insights.
Who knew a nose was so complicated? And why can’t doctors wave those wands and be wizards anymore?
Dan Perez
4:03 pm on Wednesday, February 8, 2012
Hi Carol,
Nasal congestion, I'm sure you've been told, can be the result of an allergic reaction to something or infection. Have you tried to rule out any potential environmental irritants? Since your condition developed about three years ago, did something change around that time, such as a change in your residence, job, hobby/outdoor activity; change in your diet, a new product you use or eat/drink, or other lifestyle habit? With allergies, some detective work is necessary to identify the culprit.
MSG, shellfish, aspartame, corn, wheat, milk, and sulfites (in most wines) are common food allergens.
I don't know what your diet is like, but I suggest you try subscribing to a low-carbohydrate, low sugar diet for at least 90 days and see if it makes a difference. Limit your food to protein, good fats, and plants. For example, a chicken breast with steamed broccoli; broiled salmon and a big green salad with virgin olive oil, etc. Eat a fistful of nuts for small, in-between meals: almonds, walnuts, macadamia, Brazil. Stay away from dairy for now. Drink several glasses of water throughout the day, with two drops of pure peppermint oil (reduces smooth muscle spasms).
Lastly, there is a nasal spray product called Xlear. Have you tried it already? What it does is makes it difficult for bacteria to stick to your sinuses.
Hope this helps!
Carol L. Stefan
9:36 am on Thursday, February 9, 2012
Dan, thanks so much for your coments. I moved here from CT 7 months ago, but during that 3-year period, I spent time in Florida, Arizona, Italy, Las Vegas, and New York - all different environments. My holistic doctor had put me on a very restricted elimination diet for a month, with no change. I have had very extensive allergy tests, although I know they can't test for everything. I spent many hours being grilled by an environmental specialist at Yale, who saw nothing odd. I am diabetic, so I eat pretty low-fat, low-carb anyway I am a pretty good eater. I use Xlear occasionally, but it severely dries out my nose and causes it to hurt. The only big change shortly before this started was the implantation of a pacemaker and the start of some new heart meds. I have spoken to the pacer manufacturer who assured me that there are no components that could cause these symptoms. I replaced every one of my drugs for with others in different classes, and that didn't make a difference. Basically, it's a puzzlement! In all seriousness, the only thing I haven't tried is hypnosis, but I tried to be hypnotized several years ago and could not go under. All other suggestions are welcome! Thanks for trying to help.
Dan Perez
11:28 pm on Monday, February 13, 2012
I would check out the online Physician's Desk Reference (http://www.pdr.net/) and enter one by one the names of the drugs you take, in the search box. It should tell you all the known side effects of those drugs. Some common side effects of many prescription drugs include muscle and joint pain, drying of the mucus lining, coughing, and dizziness. A decrease in dosage may reduce the symptoms. Good luck...